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Date: August 25, 2012
Event: Logan's Heroes Cruise for 22Q
City Start: Millington, Michigan
Ending: Davison, Michigan
Logan’s
Heroes: 3rd Annual Cruise for 22q
Motorcycle run & dinner to support Phelan-McDermid Syndrome
research, awareness and education for Logan’s future.
website:
www.logans-heroes.org
Phelan-McDermid Syndrome is a rare disorder and is the result of a
damaged or missing protein on the 22nd chromosome. There are fewer than
600 individuals worldwide that have been diagnosed with this Syndrome.
Because it is such a rare disorder, every donation and every contribution
raised for the Foundation is critical for research, awareness and
education for Logan’s future. Please know that Phelan-McDermid (22q13
deletion) Foundation is a 501c3 non-profit organization and donations may
be tax deductible: (ID#04-3673104). As with any donation, please check
with your tax-preparer to determine the extent of your donation
At 4 months, Logan was diagnosed with Phelan-McDermid Syndrome,
also known as 22q13 deletion. Since Logan’s diagnosis, he has seen many
specialists and receives occupational and physical therapy, speech therapy
and specialized schooling. Common features of this syndrome include
delayed or absent speech, developmental delays, low muscle tone, kidney
and respiratory problems and digestive issues just to name a few. Logan
is almost 5 years of age and we have decided to hold this 3rd Annual
“Cruise for 22q” motorcycle run and dinner fundraiser called “Logan’s
Heroes.” Great ride and a great cause! We had about 100 bikes last year
and looking for more for 2012! Logan needs all his Heroes…
If you have any
questions: email:
deweydumplin@charter.net
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